3 Highlights from 2024

1: Patient Meeting

On Saturday, April 20, 2024, we held our HAE patient meeting at Zurich Airport

These HAE experts will be happy to answer your questions in a panel discussion

  • Prof. Dr. med. Dr. Phil. Walter A. Wuillemin, HAE expert, Lucerne Cantonal Hospital
  • PD Dr. med. Urs Steiner HAE expert, Department of Immunology, Inselspital Bern
  • Dr. med. Christina Weber, HAE expert, University Hospital Zurich
  • Dr. med. Isabel Morales, HAE expert, Inselspital Bern
  • Prof. Dr. med. Dr. Phil. Sascha Zeerleder, HAE expert, Lucerne Cantonal Hospital
  • HAE patients share experiences and give valuable tips on medication use

2: hae day :-)

The Swiss HAE Association is surprising its members with this present to mark the occasion. This flying disc symbolizes active leisure activities, outdoor fun, and solidarity with those affected by hereditary angioedema.

3: Virtual, interactive HAE action week for and with patients

Together with the German and Austrian self-help groups, we are organizing this virtual, interactive HAE action week from May 14, 2024 – May 16, 2024

  • Tuesday, May 14, 2024: The doctor-patient conversation with Dr. Sabine Altrichter, Linz
  • Wednesday, May 15, 2024: Growing up with HAE with Dr. Christina Weber, Zurich
  • Thursday, May 16, 2024: The female side of HAE with Dr. Inmaculada Martinez Saguer, Mörfelden and Prof. Bettina Wedi, Hanover

Our hopes for the advocacy group and people with HAE in your country in 2025

  • CSL Behring expects approval in Switzerland for the active ingredient Garadacimab by the end of 2024.
  • KalVista submitted further marketing authorization applications for an oral treatment for acute attacks in September 2024. The marketing authorization applications were submitted via the Access Consortium to maximize cooperation between the various countries’ regulatory authorities and support a timely review process. KalVista has entered into a four-party agreement on the division of labor between the MHRA (UK), Swissmedic (Switzerland), TGA (Australia) and HAS (Singapore). However, the MAA processes take time. The fastest MAA processes usually take at least 1 year.

Updates from the member organization

  • We attended the 2024 HAEi Global Leadership Workshop in Copenhagen with three members of the Swiss HAE Association. We would like to thank you again for the excellent organization.
  • On November 8, we held our 23rd HAE general meeting. We could hold the meeting quickly, and all agenda items were approved.

Annual program

  • December 3, 2024: Christmas cards & swelling calendar sent
  • March 2025: Invitation to the HAE patient meeting on May 24, 2025
  • May 24, 2025: Swiss HAE patient meeting with lectures by HAE experts, tour of Zurich train station
  • May 2025: Virtual HAE-DACH action week (online)
  • May 16, 2025: hae day :-) – Special campaign for our members
  • Autumn: Possibly llama trekking; International HAE patient meeting for patients
  • October 2025: Invitations sent for the 24th general meeting of the Swiss HAE Association
  • October 2025: Publication of the 9th newsletter, ‘News from the Swiss HAE Association’ (German)
  • November 7, 2025: 24th HAE general meeting