News from South America and Mexico

From Regional Patient Advocate Fernanda De Oliveira Martins

2024 Highlights

2024 was a pivotal year for the HAE community in South America and Mexico. Our region’s robust participation in both the 2024 Regional Conference Americas and the 2024 HAEi Global Leadership Workshop underscored the value of these gatherings in fostering connections, knowledge sharing, and inspiration among Member Organization (MO) members. A significant milestone was the inclusion of representatives from Bolivia, expanding our collaborative network. To bolster HAE expertise within our region, we actively supported a training program led by Spanish physicians. This initiative aims to equip more healthcare professionals with the necessary knowledge and skills to provide optimal care for HAE patients.
Furthermore, we actively engaged in public consultations on access to modern therapies in Brazil. By advocating for increased access, we strive to ensure that more individuals with HAE can benefit from life-changing treatments.

Hopes for 2025

I hope 2025 will be a year of significant progress for the HAE community in South America and Mexico. I aim to strengthen regional collaboration by continuing to foster strong connections among MOs HAE advocacy organizations, caregivers, healthcare professionals, and pharmaceutical companies; and to expand access to care through advocating for equitable access to modern HAE therapies in the region.