HAE SA 2024 YEAR IN REVIEW

Our organization has had a busy, productive year raising awareness for HAE!!

In the run-up to Rare Disease Day 2024, we released a series of 6 patient video stories, with our patients highlighting the difficulties in their journeys to getting a diagnosis and the importance of having a strong patient support network.  Our annual patient meeting in Cape Town on the 6th of April was attended by doctors and patients from across the country. For the first time, we were able to offer travel grants to our patients and caregivers, ensuring record attendance and a hugely successful, informative event. We have also hosted a number of webinars for doctors and patients, including “Women with HAE”, on the 21st of November, where Prof. Henriette Farkas presented an informative session on the topic. On hae day :-), we launched our mental health program, “Mental Health Matters”, starting with a series of 6 videos., Our program is ongoing, and we hope to offer continued support for our patients and caregivers.

Our team attended the 2024 HAEi Global Leadership Workshop in Copenhagen in October, and we look forward to seeing our colleagues and friends at the EMEA Conference in 2025.

HAE S.A. has made significant progress over the past year and could not have done so without the dedication of our physicians and the support and guidance of our colleagues and friends at HAEi and within the greater rare disease community. As we look back at another successful year of HAE advocacy, we look forward to the challenges that face us in the new year.