There were 2 key developments for HAE Singapore and HAE patients in Singapore.

Firstly, a dedicated HAE Clinic was set up in the early part of 2024 at Tan Tock Seng Hospital. The clinic also set up referral protocols with other hospitals in Singapore to refer potential patients to this clinic. This move demonstrated the recognition of HAE within the medical community and hopefully helped to consolidate resources, knowledgeable doctors, and patients at one locale, as well as the first step towards an ACARE Centre in Singapore.

Second, HAE Singapore is now working together with other rare disease groups under the banner of Rare Diseases United to share resources, collaborate on initiatives, and have strengths in numbers. HAE Singapore has learned much from this partnership and will be participating in various activities to push the agenda for better data and decision-making for rare diseases and a call for a strategic plan for rare diseases in Singapore.

Our hopes for 2025 are the same as 2024. We hope to reach out to all HAE patients and caregivers in Singapore. We have been slowly building up the membership for HAE Singapore, but we hope to have a big enough community so that we can have regular activities for both HAE patients and caregivers. We are looking to bring modern treatments to Singapore. There are many opportunities to hopefully bring generic icatibant to Singapore, support registration of new treatments such as sebetralstat, and participate in clinical trials for deucrictibant. 2025 will hopefully be a good year for HAE patients in Singapore.