Symposium on Rare Diseases: Advancing knowledge and treatment options

From November 15 to 17, the Fourth Symposium on Rare Diseases took place in Divčibare, Serbia, organized by the Serbian Association for Preventive Pediatrics (UPPS). The event brought together medical experts and patient associations to exchange knowledge and improve the diagnosis and treatment of rare diseases in Serbia.

One symposium topic was hereditary angioedema (HAE), a rare genetic condition that causes recurrent episodes of swelling. Several expert presentations emphasized the latest advancements in the treatment and care of HAE patients.

Assistant Professor Dr. Radovan Mijanović and Dr. Dušanka Marković, long-time collaborators with the HAE Serbia Association, spoke about HAE at this event.

Assistant Professor Dr. Radovan Mijanović delivered a lecture titled “The Efficacy of Lanadelumab in Reducing Attack Frequency and Improving AE-QoL in HAE Patients in Serbia,” showcasing the positive impact of this therapy on patients’ quality of life.

Dr. Dušanka Marković presented “The Future of HAE Therapy – Expectations and Hopes,” exploring innovative treatment approaches and prospects for managing the condition.

Jovana Cvetković Lazić, president of the HAE Serbia Association, shared insights into patients’ challenges and emphasized the importance of collaboration between healthcare professionals and patient organizations.

“The symposium offered a valuable opportunity to share information about HAE and to raise awareness of this condition. We want to thank the organizers, Dr. Dušanka Marković and Doc. Dr. Marko Jović, the president of UUPS, for their excellent organization and for allowing us to be part of this important event,” said Jovana.

The symposium emphasized the need for continued education and cooperation to enhance care and support for individuals with rare diseases.