Dear HAE community, HAE Indonesia has made a few small strides in 2024 towards better awareness for HAE in Indonesia.

To share our experience and also to learn about others’ experiences, I met up with Ms. Suchitta Shee Kengtanyagarn (henceforth Shee) from HAE Thailand and also participated in a virtual roundtable session organized by Deloitte, together with Ms. Shee and Ms. Makiko Matsuyama, President of HAEJ, to share the realities and challenges of HAE in our respective countries. This is the first time HAE Indonesia has participated in such activities together with other member organizations in the region.

HAE Indonesia is also connecting and working with medical students in Surabaya, Indonesia, to introduce them to HAE and to assist them in presenting about HAE in their seminars to help raise awareness and interest in the condition in the medical schools.

For 2025, we want to help more people with HAE who remain undiagnosed. Increasing awareness about the condition among the public and health professionals will move us closer to shorter delays in diagnosis. The long-term goal is to improve the availability and access to treatment in Indonesia and hopefully help bring treatments to other countries in the region.