On 30 November, HAE Scandinavia held a meeting with patients and caregivers in Aalesund, Norway, with Norwegian members. The discussion focused on living with HAE across generations, the significant progress in HAE treatments, and the promising new treatment options on the horizon.

Living with an HAE diagnosis should no longer limit one’s ability to live a life without restrictions. That is why it’s essential to support HAE Scandinavia to ensure ongoing awareness and interest in HAE among:

• Doctors and nurses, who can provide the best possible care,
• The pharmaceutical industry, which develops new medicines, and
• Authorities, who must understand the positive impact of approving new treatments that offer better control and improved outcomes for HAE patients.

This collaboration creates the best foundation for living a full life without limitations.

HAE Scandinavia is a community for everyone whose lives are touched by HAE, including patients, families, friends, and supportive colleagues. The organization offers tools to make daily life with HAE easier:

• HAE TrackR, which helps you track your HAE and provide documentation for your doctor.
• HAE Companion, which ensures your emergency card is always within reach when traveling.
• SumsUp, your pocket companion, reminding you that you’re never alone with HAE.
• LEAP, an educational program for young people who want to make a difference. In 2025, a young participant from Norway will work on the project: “How do we find young people with HAE in Scandinavia and motivate them to join the HAE community?”

HAE Scandinavia extends heartfelt thanks to everyone who attended the meeting in Ålesund and to all those supporting the organization. Remember, you can always reach out to HAE Scandinavia – we are here for you!