HAEi’s CEO and Chairman of the Board, Anthony J. Castaldo, and HAEi’s President, Henrik Balle Boysen
Dear HAEi Friends,
A very warm welcome to the third 2025 edition of Global Perspectives – HAEi’s flagship magazine – where all of what is happening in the global hereditary angioedema (HAE) community comes together in one place.
At the heart of this edition is an overview of the recent 2025 HAEi Regional Conference EMEA. Over 2 days, 700 people with HAE, caregivers, and expert physicians, representing 66 Member Organizations and around 13,000 patients, heard the latest news, views, and science of HAE in a sun-drenched Rome, Italy. Under the shared theme “Embracing Opportunities” (also featured in the conference held in Asia Pacific and will be featured in the Americas next year), the conference showcased our community’s firm commitment to stronger advocacy, deeper collaboration, and improved access to diagnosis and treatment.
Young people, who are the future of HAE advocacy, are a vital part of that commitment. A dedicated family area in the main conference room was a visible reminder that families and young advocates are at the heart of our thinking, now and in the future. We were delighted to announce on stage that the highly successful HAEi LEAP program would be run again in 2026. HAEi has received many exciting proposals from the advocates of tomorrow, who are seeking learning opportunities and experiences to enhance skills that can be applied to improve the lives of people in their local HAE community. Look out for further announcements soon.
Whether you are young or old, have HAE, are a caregiver, or are a scientist, we encourage you to explore the detailed coverage of the conference. There is so much we can learn from the hard work and dedication of our HAEi Member Organizations, who turn everyday challenges into opportunities that lead to the ultimate prize — access to life-saving medicines.
Our HAEi conferences may be over for this year, but with the dawn of a new year around the corner, hae day :-) 2026 is already taking shape. This hugely popular annual celebration of the HAE community takes place every 16 May. To support your planning, this edition of Global Perspectives provides an update on all that’s happening and how to get involved.
This magazine will be the last for 2025. The publication schedule has been slightly rescheduled to better align with the timing of the 2025 HAEi Regional Conference EMEA, as well as the two forthcoming conferences – the 2026 Global Angioedema Leadership Conference and the 2026 HAEi Regional Conference Americas. The first edition for 2026 will arrive at the start of February, at the perfect time to review 2025 and preview 2026.
On behalf of the Board of Directors and the entire Executive Team, thank you for all that you do for the global HAE community. We wish you an enjoyable read, a wonderful holiday season, and a peaceful New Year.
Warmest regards,
Anthony J. Castaldo
Chief Executive Officer and Chairman of the Board, HAE International (HAEi)
Henrik Balle Boysen
President, HAE International (HAEi)