Round-table: Real-life experiences and discussion

Prof Laurence Bouillet took the audience through a patient case study, joined on stage by members of the Scientific Committee. Prof Bouillet posed questions to the panel based on the case presented, and the panel shared their own final reflections on the management of HAE.

Key topics covered included:

  • The use of an emergency helpline for healthcare professionals on HAE and angioedema
  • Danazol should not be used to treat HAE attacks
  • The importance of patients having at least two doses of an effective on-demand treatment, such as icatibant, in the event of an attack
  • The role of patient and caregiver education and training in self-administration, including through intravenous injection
  • Gradual or immediate discontinuation of danazol for patients when HAE-specific long-term prophylaxis becomes available
  • Treatment choice in the event of a pregnancy

At the conclusion of a lively discussion and debate, the Co-Chairs thanked all speakers, panelists, and participants for a productive Scientific Track. Following lunch, the physician delegates joined patients and caregivers in the Patient Track for further presentations and discussion.