From Juan Carlos Valera, Vice President, HAE Spain

AEDAF Participates in the 2025 HAEi Regional Conference EMEA (Rome)

The Spanish Association of Familial Angioedema Patients (AEDAF) had a large delegation at the 2025 HAEi Regional Conference EMEA, held in Rome, Italy, from October 10th to 12th. With approximately 30 members in attendance, including members from different communities (Madrid, Catalonia, Andalusia, Castile and León, the Basque Country, Navarre, La Rioja, and Aragon, among others) and medical professionals from across Spain, it was one of the largest gatherings.

As always, this conference provided an opportunity to personally observe the situation of HAE patient associations in the participating countries, the specialized medical professionals treating them, their access to treatments and medications, and how living in different countries affects these aspects of their lives.

The situation varies so much depending on the country of birth that it almost seems like different worlds and different diseases. This makes you realize that we must continue fighting to ensure everyone has access to, first and foremost, an accurate diagnosis, since confirming it can be a difficult task, and secondly, to the appropriate medication to treat the disease and achieve a normal quality of life, as far as possible. Although it seems like an impossible task, this is what associations work towards every day, and with the help of HAEi, we are making progress step by step towards achieving this goal, which is complicated by the different and varied situations in each country.

Attending and participating in the 2025 HAEi Regional Conference EMEA in Rome was a true pleasure and provided invaluable access to important information to continue raising awareness and trying to improve the quality of life for people affected by HAE in Spain.