News from South America and Mexico

From Regional Patient Advocate Fernanda De Oliveira Martins

HAEi Member Organizations (MOs) do an incredible job raising awareness about HAE, providing essential support to patients, and collaborating with doctors and representatives from pharmaceutical companies. HAEi offers a range of tools and services to support MOs in what can- at times- be demanding work. In my region — South America and Mexico — we held the first Member Organization Growth and Impact Summit (MOGIS) at the end of May. At this Summit, MO leaders received guidance and support to develop 12-month action plans. My focus over the past few months has been to follow up with MOs on their plans and to offer assistance and advice as needed. HAEi has also worked to simplify and improve the efficiency of this process. MOs now have their plans available in Focal Point and can update them online. By integrating the plans into Focal Point, MOs can more easily track their activities and integrate the relevant HAEi tools to support their delivery.

Over the last two months, I’ve shared the Monthly Resource Focus with my region MOs, as well as information about HAEi events and ACARE events. MOs are always welcome to contact me for support, and I will help however I can. One recent example is assisting an MO in getting set up and starting to use HAEi Connect.

In my region, MOs also benefit from the Brady Club resources published by our neighbor, HAEA, in both English and Spanish. We reproduce the book in our region’s countries, and children from my region’s countries have been sending their stories for publication in the magazine.

You can find Brady Club resources on the HAEi Youngsters’ Community website. Explore the site to find all our other resources for kids and youngsters!