From Zoe Steiner, Operations Coordinator, HAE Australasia

HAE Australasia: Strengthening Connections and Looking Ahead

HAE Australasia continues to evolve and grow, with exciting developments across advocacy, patient engagement, and strategic partnerships.

Representing Our Region at ASCIA 2025

In September, HAE Australasia was proud to be represented at the ASCIA 2025 Conference in Brisbane by Fiona and Zoe. This three-day event provided an invaluable opportunity to connect with pharmaceutical companies offering treatment options for patients with HAE, as well as a range of clinicians and fellow patient advocacy organizations from across the region.

Notably, our board member and clinical expert Professor Connie Katelaris attended and delivered an insightful presentation to delegates. We were also delighted to see Dr Hilary Longhurst from New Zealand sharing her expertise in an engaging session that further strengthened trans-Tasman collaboration. These discussions and connections help us drive forward improved care and access for HAE patients throughout Australasia.

2026 Sydney Patient Meeting in the Works

Looking ahead, we are excited to announce that planning is underway for our next major Patient & Carer Meeting, scheduled for February 2026 in Sydney. This conference aims to bring together approximately 60 patients and carers from across Australia for a program of education, support, and community connection.

We’re currently finalizing venue and program details, and look forward to opening registrations soon. We’re also actively engaging with sponsors and are pleased to already have a number of supporters on board to help make this important event possible.

A Fresh Look for HAE Australasia

In line with our continued growth and evolving role in the HAE landscape, HAE Australasia is undertaking a comprehensive brand refresh. Our current logo, color palette, and printed and online materials have served us well, but are due for an update to reflect the modern, forward-thinking organization we’ve become.

The new branding will feature a simple, contemporary theme designed to better align with our mission to improve both preventative and acute care management options for our community. Stay tuned as we look forward to sharing the new look with you in the coming months.