HAEi’s CEO and Chairman of the Board, Anthony J. Castaldo, and HAEi’s President, Henrik Balle Boysen

Dear HAEi Friends,

We welcome you to this third issue of Global Perspectives with great optimism for the future, energized by the trailblazing collaboration, determination, motivation, and shared purpose on display at the 2024 HAEi Global Leadership Workshop (GLW) and the ACARE Global Angioedema Forum 2024 (GAF). Total attendance exceeded 750 people representing 90 countries and included patient leaders, healthcare professionals, and industry representatives. As you will read in this magazine, remarkable and results-oriented, these events ran simultaneously and culminated in an exciting half-day joint session where “GAF Meets GLW.”

This issue also highlights the incredible HAE advocacy activities taking place in every corner of the globe—from the advancements in the Asia-Pacific region as we gear up for the 2025 Regional Conference APAC in Manila to the inspiring progress made in Sub-Saharan Africa, Central America, and Europe. The appointment of new Regional Patient Advocates and the realignment of responsibilities within our team have strengthened our ability to provide tailored support to Member Organizations (MO) in every region of the globe.

HAEi’s heart and soul revolve around our steadfast commitment to helping our MOs flourish by providing the tools needed to fulfill their mission. In the article about GLW and GAF, you will read about transformative resources like the HAEi FocalPoint portal, which enhances communication between our MOs and HAEi, and the upcoming release of the next version of the HAE TrackR app, designed to give patients even more control over managing and documenting their HAE. We also spotlight the continued development of educational modules in the HAEi Advocacy Academy that offer training to MOs and the next generation of HAE advocacy leaders.

Looking ahead to 2025, we are excited about the new class of HAEi LEAP students who will be learning the project management, communications, and leadership skills required to ensure the success of future HAE advocates. We also look forward to accelerating ongoing advocacy efforts through the previously mentioned 2025 HAEi Regional Conference APAC that will take place in Manila. This conference, which will revolve around the theme, “Embrace Opportunities,” reflects our enduring commitment to providing HAEi friends in each region with opportunities to share experiences, expand knowledge, strengthen advocacy skills, and connect with healthcare professionals and industry representatives.

The HAEi Board of Directors and the entire HAEi Team are continuously inspired by the unwavering dedication and meaningful progress being accomplished by HAEi friends throughout the world. Your efforts have a significant, positive impact, and your contributions inspire even more concerted action to create a world where everyone affected by HAE can live a full, healthy, and empowered life.

With this issue, Global Perspectives magazine takes an exciting leap forward by transitioning to an online format, offering readers the convenience of accessing the magazine in their preferred language* with just a few clicks. This evolution not only enhances accessibility but also ensures that a wider global audience can stay informed about the latest developments in HAE care, advocacy, and research. By breaking down language barriers and embracing digital innovation, we aim to connect and empower even more individuals within our community. For those who prefer the traditional experience, the Magazine PDF will still be available, ensuring everyone can enjoy the content in the format they prefer.

We hope this issue of Global Perspectives serves as a source of inspiration for being an active part of the global HAE movement, which aims to create a brighter future for people with HAE and their families.