Jørn Schultz-Boysen, Executive Vice President Global Operations and Chief Compliance Officer

Update Global Operations

It’s hard to believe how quickly time passes. While the recent 2024 HAEi Global Leadership Workshop (GLW) and ACARE Global Angioedema Forum 2024 (GAF) in Copenhagen are still fresh in our minds, I find myself reflecting on the lasting impact of the 2024 HAEi Regional Conference Americas, held in Panama earlier this year. Though some time has passed, the feedback from the post-conference survey confirms that the event continues to leave a lasting impression, offering valuable insights that help us shape and improve future gatherings for everyone involved.

Building on the momentum from Panama, we recently gathered over 750 participants from 90 countries for the 2024 GLW and GAF held in Copenhagen in October. This joint event offered our global HAE community an unparalleled opportunity to come together, learn from one another, exchange ideas, and network. Bringing together key opinion leaders from all Member Organizations (MO), dedicated physicians, and representatives from the pharmaceutical industry presented a tremendous opportunity to further enhance and build on the quality of life for people with HAE. Thank you to everyone for participating in this highly impactful event.

Also, a big thank you goes to our entire team for their extraordinary work in planning and executing such a significant event.

I am excited to announce that a new release of our HAE TrackR app is just around the corner. The app’s improved features will continue to support patients in taking control of their HAE by offering them a better user experience and even more helpful tools.

For our MOs, HAEi FocalPoint was launched just before the GLW in Copenhagen. This portal serves as a central hub for accessing and utilizing HAEi’s tools and resources, helping to keep communication flowing between MOs and HAEi, while enabling MOs to make the most of the support available to them.

Looking forward to 2025, we are already planning for the 2025 HAEi Regional Conference APAC, which will be held in Manila, Philippines, from 7-9 March 2025. We are excited to bring together the HAE community from the Asia-Pacific region countries once again, with dedicated tracks for patients/caregivers, healthcare professionals, and youngsters.

Lastly, the HAEi LEAP 2025 application process is now open, and we are eager to see all the exciting and innovative ideas that the next generation of young leaders and their MOs will bring to the table. We look forward to the creative and impactful projects resulting from this program.

As always, I encourage you to explore haei.org to learn more about the tools, resources, and programs available to you. We look forward to continuing our shared mission of improving the lives of people living with HAE worldwide.

This fall, Global Perspectives magazine evolves into an online format, allowing readers to access the magazine in their preferred language. This step makes the publication more accessible and allows many more people to stay current on the latest HAE care and advocacy developments. We’ll still have the Magazine PDF available if you want to read the news that way.