Fiona Wardman, Executive Vice President Global Advocacy and Chief Diversity Officer
Update from Global Advocacy
The success of the recent 2024 HAEi Global Leadership Workshop and ACARE Global Angioedema Forum 2024 stands as a testament to the global movement HAEi has created for hereditary angioedema (HAE) advocacy. With participation from 90 member countries and 750 attendees representing patients, healthcare professionals, and industry partners, these gatherings were not just events but milestones. We know that the collective power of global patient advocacy can improve the lives of those affected by HAE.
Strengthening our global outreach and support
To further enhance our on-the-ground outreach and support, we welcome the appointment of a new Regional Patient Advocate (RPA). The latest addition to the team provided the opportunity to reallocate some responsibilities to ensure every region receives the targeted attention it needs. The changes will help HAEi reach more patients and Member Organizations (MO) while fostering more opportunities for collaboration and growth.
Our new RPA, Fanny Schappler, will support countries in the Asia-Pacific (APAC) region, amongst others. The APAC region focus is particularly exciting, as it coincides with our upcoming 2025 HAEi Regional Conference APAC in Manila, Philippines. Building on the success of the 2023 HAEi Regional Conference APAC, next year’s meeting promises to offer an even better platform for patients, caregivers, physicians, and industry partners to come together. We will build on the momentum generated in 2023 and create more opportunities for awareness, advocacy, and access to modern treatments across the region.
The 2024 HAEi Regional Conference Americas in Panama was a resounding success, showcasing the tireless dedication of our community. My heartfelt thanks go to everyone who participated and contributed to the event. Each HAEi conference is carefully tailored to the region it serves and fosters a deep sense of community among attendees. At each meeting, I am reminded of the incredible strength and passion within the HAEi network, and I eagerly anticipate the upcoming events in 2025.
A global community dedicated to change
HAEi continually expands its reach—locating more patients, supporting new MOs, and intensifying efforts to increase global awareness and education programs. HAEi’s resources and tools, available in more languages than ever before and tailored to the needs of our community, continue to evolve and improve. By working closely with pharmaceutical companies and MOs, we see improved access to modern therapies and more widespread reimbursement for HAE treatments in many countries.
Reflecting on our collective journey, I am continually inspired by the dedication shown by our community. From the tireless efforts of individual MOs to the incredible work of the HAEi team, the commitment to improving the lives of those with HAE—both locally and globally—is truly commendable. With a shared vision and relentless drive, we will continue to build a future where every person with HAE has access to the care and support they need to live full and healthy lives.