Taking advantage of healthcare professionals and patients being in the same room, Henrik Balle Boysen and Jørn Schultz Boysen grabbed ten minutes each to share the latest updates on two HAEi technological tools.
Giving the fuller picture – Using HAE TrackR
Henrik spoke first, reminding the audience that HAE TrackR is an easy-to-use electronic diary, and a personalized tool to empower every patient to take control of their HAE.
He noted that more than 2,000 people have downloaded HAE TrackR since its launch, and this can be done from both Google Play and Apple App Store. And with 36 languages supported, it is available to many people.
Henrik told the audience that fellow patients developed HAE TrackR, but it is also a tool for physicians as it promotes great communication between doctors and patients. When patients can share their HAE story, such as attacks, treatments, etc., it allows for more informed discussions and truly individualized care.
Henrik outlined the next updates for HAE TrackR, which are due for release later in autumn:
- In-app notifications as an alternative to text message reminders
- Reminders about treatment use during attacks
- Fast searching for batch and medicine numbering
- Adding the Angioedema Control Test so that physicians can see how well HAE is managed
- Integration of data into registries (where patients have approved)
Henrik concluded by telling the audience that HAEi continued to act on the feedback received about HAE TrackR to make it easier and better to work with.
Your HAE companion
‘Ladies and gentlemen, HAE Companion is a life-saver.’
– Jørn Schultz-Boysen, Executive Vice President Global Operations and Chief Compliance Officer, HAEi
A pocket-size travel partner, HAE Companion, is developed to make travel and life easier and safer for people with HAE, said Jørn. At the heart of HAE Companion are emergency cards that can be downloaded to a phone, similar to a plane or train ticket. These cards provide essential details on HAE and sources of treatment and advice across 89 countries worldwide, with more to come.
Information includes links to the MO in that country, ACARE centers, nearby hospitals, and doctors. Integration with mapping apps means it will even give you directions on how to get there, which is handy in an emergency, Jørn suggested.
Jørn encouraged everyone present to have HAE Companion on their smartphone. Better to have it and not need it, than need it and not have it, as the old saying goes.
