The last 2024 HAEi Global Leadership Workshop (GLW) and ACARE Global Angioedema Forum 2024 (GAF) held in Copenhagen have left us with greater knowledge and understanding of where and how we have to navigate now.
The teachings and knowledge acquired in previous forums and workshops add to the news that was presented at this important GLW/GAF 2024 for the benefit of HAE patients, this will undoubtedly contribute to the dissemination of information about HAE among the medical community and among patients with suspicion of the disease who do not yet have an accurate diagnosis.
The union between the members of the Mexican Association of Hereditary Angioedema (AMAEH) is very important to provide greater support to patients, caregivers, and relatives.
An important aspect in which we are working as an association is to involve and invite the children of our community to the different activities we carry out, since they will be the ones who continue to navigate the ocean that we are building for them.
AMAEH, as a member organization, the GLW/GAF 2024 encourages us to understand, train, and use among its leading members and other members the tools that we have at our disposal to have an orderly, precise, exact, and updated database.
We are aware that the use of our social networks and website is of vital importance to promote knowledge and dissemination of the information we have about HAE, in such a way that we achieve accompaniment of the patient and caregiver at all times.
Our main objective is aligned with the objective of the HAEi, which is to improve the quality of life of patients as well as have the medicine available in health institutions. Provide advice to patients, family members, and caregivers on how and where to obtain the medication.
Continue to disseminate to the medical community what Hereditary Angioedema is and its treatment.
All our love to heaven to Dr. Marco Cicardi and Dr. Marcus Maurer because without them, this would not have been possible.







