2024 has been a year of progress for the community of patients with Hereditary Angioedema in Cuba.

Our entry as a member country to the HAEi umbrella led to the participation of three patients and a doctor in the 2024 HAEi Regional Conference Americas, as well as one patient and two doctors in the 2024 HAEi Global Leadership Workshop and ACARE Global Angioedema Forum 2024 in Denmark.

We have seen firsthand the dedication of HAEi to make us feel accompanied, and the regional advocates, in our case Javier Santana, are our voice before it.

We are still one of the countries at a disadvantage due to the lack of diagnostic possibilities and specific treatments.

However, the Cuban community is organizing itself – we already have a WhatsApp group made up of patients from various provinces of the country, through which we interact and share information, and we already have had the first virtual meeting.

Recently, the possibility of diagnosing a group of people whose clinical symptoms suggest the presence of this rare disease has been opened.

One step at a time, but without stopping, making ourselves visible is the watchword, and our work project is to walk the long road towards well-being and quality of life. We are sure that together we will achieve it!