Interview with Renata about Abranghe. During the 2024 HAEi Global Leadership Workshop in Copenhagen, Denmark, Abranghe had the opportunity to answer questions about the experience of its creation and the challenges faced during this period.

We shared the motivation behind the creation of Abranghe, an organization dedicated to supporting patients and promoting awareness of HAE, with the voluntary involvement of patients and caregivers.

To this end, we followed all legal procedures, gathering the necessary documentation and ensuring full compliance with Brazilian laws for formal registration as a non-profit organization.

The creation of an assembly was necessary to approve the bylaws and, subsequently, obtain the CNPJ, a document that formalizes the organization’s legal existence, allowing its regular and recognized activities before the government and institutions.

We also emphasize the importance of registering patients and medical resources to strengthen the association and achieve our goals.

Regional group activity – South America and Mexico. The South America and Mexico group activity at the 2024 Global Leadership Workshop featured playful and creative dynamics. In a fun and interactive way, the leaders of the countries involved had the opportunity to test and develop their knowledge about AEH and share valuable information about the actions developed by the Associations of each country.

The Quiz on AEH excitedly engaged everyone and allowed them to learn new things. In addition, the activity with the balloons encouraged the participants to reflect on their associations’ main challenges and seek solutions.

It was an extremely productive afternoon for all participants.