My name is Khatera Naimi, and I am the representative of Afghan HAE patients. I was supposed to participate in this conference, but unfortunately, due to barriers in visa issuance, I could not come to Denmark and join you all.
I represent a vulnerable group of patients who have no supporters in Afghanistan. Additionally, I am a sick mother with four children, two of whom also suffer from HAE.
I appreciate and congratulate the launching of this conference and hope this initiative continues.
As a representative of my nation, I would like to share the concerns and requirements of my country’s HAE patients:
- In Afghanistan, HAE disease is still not completely recognized, a comprehensive diagnostic health clinic is not available, and most doctors still do not know about this disease.
- The de facto government also does not take care of this issue.
- There are no awareness sessions through the health ministry or media.
- Patients always suffer from wrong diagnoses and incorrect prescriptions and medications.
- Most patients are living below the poverty line and are not able to visit doctors.