From Michelle Coronado, Secretary, HAE Panama

During the first months of the year, we have successfully raised awareness of the care management guidelines for patients with Hereditary Angioedema in the country.

We also had a meeting at the Ministry of Health with other rare disease associations, where we discussed the acquisition of modern medications for these conditions and progress in the rare disease law.

Future Plans

• We going to help to distribute the new care management guidelines for patients with Hereditary Angioedema to more hospitals and care centers in remote areas in the country to increase its reach and ensure more doctors are aware of the disease.
• We will continue to monitor the approval of modern medications for HAE.
• We will continue to hold more events that help raise awareness about HAE in Panama.

Events for hae day :-)

For Saturday, May 16th, we are requesting that various public and private buildings throughout the country be illuminated. This includes the Panama Canal Administration Building. Our patient group will also be there, distributing flyers with information about HAE to passersby. We will have a discussion on HAE and emotional intelligence with speaker Cecilia Adriana Ramírez, who is also a patient with Hereditary Angioedema. Members of the association, patients, and their families will participate.

The 2026 Global Angioedema Leadership Conference

Regarding the 2026 Global Angioedema Leadership Conference in Madrid, Spain, we must congratulate the organizers for having such a comprehensive, timely, and, above all, well-suited program for patients and their families.  It was very interesting to learn about the new medications that are in their final stages of testing. We hope that in the near future these medications will be registered and available in our country for a better quality of life for patients with HAE.