From Sergey Frost, HAE Kazakhstan

HAE Kazakhstan has taken part in public talks arranged for the media to raise awareness about HAE in Kazakhstan, to be heard by authorities, and mainly the medical world, and let them know that we exist and what we face on a daily basis with a medication shortage. Please find relevant links here:

Movie watching 26 FEB 2026 / Dedicated to Rare diseases, including HAE. Movie name ” Rare People”
Takeda arranged this event and invited rare disease patient organizations. HAE KZ is one of the movies, and one episode was dedicated to HAE, where HAE patient was telling about the daily challenges she faces due to her HAE diagnosis. You can watch the movie here: Редкие люди: истории людей с редкими заболеваниями – YouTube