From Peter Strahl, president HAE Hungary

On April 11, 2026, the 30th anniversary club meeting of HAE Hungary was held on the premises of the Department of Internal Medicine of Semmelweis University. Our fellow patients, relatives, interested parties, doctors, and pharmaceutical company representatives participated in this jubilee gathering.
The club event also hosted the official general meeting of the Hungarian Patient Organization: after 30 years, President István Nagy, who was one of the founding members of HAEI, decided to retire. The organization thanked him for his many decades of work, which is exemplary both in the establishment and operation of the Hungarian patient organization and in terms of the International Patient Organization.

The members elected a new presidency: Péter Stráhl, president, Dr. Prof. Henriette Farkas, professional co-chair, and Zoltán Maros, secretary. The officials reported on the financial situation of the patient organization and the tasks ahead of them.

For the year 2026, it was decided to carry out the following tasks: the approval of the new officers and the amendment of the statutes of the patient organization by the court. Involving the 220 registered patients in the work of the Hungarian patient organization and encouraging them to be more active by strengthening communication. HAE is placing educational posters in the ER department of major hospitals, in the Internal Medicine.

We informed the participants about the events of the past year, which were the Rare Disease Days 2025 and 2026, the 2025 HAEi Regional Conference EMEA in Rome, and the 2026 Global Angioedema Leadership Conference in Madrid.

Prof. Dr. Henriette Farkas gave a presentation on the current situation of the Hungarian ACARE center, as well as the Hungarian and international pharmaceutical supply.

HAEi’s Vice President, Director, Regional Advocacy Program, and Regional Patient Advocate, Michal Rutkowski, paid his respects at our event. In his interesting presentation, he presented the EMEA region and its latest statistical data. The representatives of the pharmaceutical companies also introduced themselves and commented on the event.

We agreed to hold a self-injection course in the second half of the year.