From HAE El Salvador
During the period between January and April 2026, significant progress was made in strengthening medical collaboration and disseminating information related to HAE in El Salvador.
In particular, a strategic approach was established with physicians from various specialties nationwide, which has allowed for dialogue and knowledge exchange.
Likewise, initiatives have been proposed for the development of future projects, including the organization of seminars and the use of virtual platforms. These tools aim to facilitate access to updated information for healthcare professionals in different parts of the country, thus contributing to greater awareness, timely diagnosis, and appropriate management of angioedema.
Future Plans for 2026
After our participation during the 2026 Global Angioedema Leadership Conference in Madrid, looking ahead to the remainder of 2026, a series of strategic objectives have been defined to strengthen knowledge and care for angioedema in the country:
- Conduct a national survey of patients diagnosed with angioedema, in order to obtain more accurate data to guide public health actions and improve access to treatment.
- Begin developing a national guide on hereditary angioedema, which will serve as a reference for healthcare professionals in the diagnosis, treatment, and follow-up of patients.
- Organize and conduct the first webinar for physicians in El Salvador, with the aim of expanding knowledge about hereditary angioedema and promoting best clinical practices.
Event plans in your country for hae day :-) 2026.
As part of the commemoration of hae day :-) 2026, several activities have been proposed to raise awareness and educate the public:
- Hold the second commemorative walk in El Salvador’s Bicentennial Park, with the goal of generating public awareness about hereditary angioedema and giving visibility to patients living with this condition.
- Distribute informational materials, such as advertising pamphlets, in different areas of the country, with clear and accessible information about angioedema, its symptoms, and the importance of timely diagnosis.
The 2026 Global Angioedema Leadership Conference
Participation in the 2026 Global Angioedema Leadership Conference held in Madrid in 2026 was a highly enriching and productive experience. This event provided a valuable opportunity to connect with physicians, leaders, and patients from different countries, fostering the exchange of experiences and best practices in the management of hereditary angioedema.
During the conference, it was possible to learn firsthand about the strategies implemented in other countries to strengthen their patient communities, providing a global perspective and new ideas applicable to the national context.
Also, for the first time, one of our healthcare professionals in El Salvador participated in the conference and was able to connect with healthcare professionals interested in supporting the development of initiatives in El Salvador. This opportunity to participate contributed to his knowledge, experience, and resources in the field of diagnosis and treatment of HAE. I am extremely grateful to HAEi for giving us this opportunity.
In addition to the academic and professional components, the event provided an opportunity to connect with patients from other nations, strengthening the sense of community and mutual support at an international level.