From Raquel Martins and Renata Marchese, HAE Brazil/Abranghe

1) New drug approved in Brazil by ANVISA

2) 3rd Edition of Casa Hunter’s Rare Disease Day – Encounters that change destinies

In 2009, Dr. Anete Grumach found me online and said that patients with hereditary angioedema needed to get organized. In April 2010, Abranghe was born with her support. Today, we are together at the 3rd World Rare Disease Day, promoted by Casa Hunter. It’s more than just a record. It’s confirmation that when patients and doctors walk side by side, lives are transformed.

Thank you for believing. Another year of dedication, support, and fighting for all patients and families affected by HAE in Brazil. Abranghe has been a beacon of hope, disseminating accurate information, defending rights, and promoting awareness. Our mission remains firm: to improve the quality of life of those living with HAE. We thank all the doctors, associates, partners, and volunteers who make this journey possible. Together, we are the strength of Abranghe!

3) GEBRAEH Meeting

On April 23rd, the GEBRAEH Meeting took place. Progress, knowledge, and the exchange of experiences marked this important scientific meeting promoted by GEBRAEH. With a comprehensive program, the event brought fundamental discussions about hereditary angioedema (HAE), from diagnosis to the most current prevention and treatment strategies. Experts from Brazil and abroad shared evidence, challenges of clinical practice, and real perspectives on patient care.

Moments like this reinforce the importance of continuous updating and integration among healthcare professionals, always with the goal of improving the quality of life of people living with HAE. Abranghe continues to participate in, learn from, and value initiatives that strengthen knowledge and expand access to quality information.