Diamond sponsor session: BioCryst

Next onto the main stage were representatives of BioCryst, the diamond supporter of the 2026 Global Angioedema Leadership Conference: Diane Ramsey-Paige, the Patient Centricity Lead, and Danielle Petrangeli Potteiger, SVP, Marketing and Operations, Americas. Although both were new presenters at an HAEi conference, they weren’t new to many in the audience, who greeted them both warmly.

Danielle and Diane told the conference how they have met and learned from so many in the HAE community over the years, and that this knowledge has been a critical part of all BioCryst has been able to achieve.

“What we like to say at BioCryst is that we’re just getting started,” Danielle told the audience. She explained that listening to the HAE community has inspired everyone at the company to move faster, run harder, and maintain a deep commitment to the community. The result, she said, was the 2020 US launch of the first once-daily oral therapy for children with HAE aged two to 12: a product shaped by insights from people with HAE and their caregivers, and by the wholehearted participation in clinical trials.

‘We’re just getting started. We recently acquired Astria, which allows us to be even bigger and bolder, bringing additional therapies to the HAE community and better serving you.’

– Diane Ramsey-Paige, BioCryst

Praising the diversity of the HAE community, Danielle made clear how honored BioCryst was to be part of it and to hear about unmet needs. One of these is access to medicine. BioCryst’s product is now available in 45 countries and counting, but of course, she said, “We’re just getting started.”

BioCryst reiterated a longstanding promise: to make the therapy available around the globe, regardless of ability to pay. The speakers were keen to stress that this is not going to happen immediately, but rather something they are constantly striving for.

Concluding, Diane spoke for both when she said that this is a promise that neither of them takes lightly. She thanked the HAE community for all it had done.

‘No matter how many oceans are between us, where you live and what your HAE looks like, please know that BioCryst is dedicated to this HAE community for the long term.’

– Diane Ramsey-Paige, BioCryst