From Arbia Barhoun, HAE Tunisia

Hereditary Angioedema Patients’ Meeting in Tunisia
A meeting of angioedema patients affiliated with the Tunisian Association for Angioedema was held at the Sheraton Hotel in Tunis on April 26, 2025. Many thanks to HAEi for their support and assistance in the success of this meeting, which represents a starting point in the progress of achieving our desired goals.

Thank you, Ms. Maria Ferron and Mr. Mohamed Osman, for your efforts and dedication to helping us. On behalf of myself as a patient and a patient caregiver in Tunisia, and on behalf of all of them, I want you to know that what you are doing is among the most noble and humanitarian of acts.

The effects of the meeting were evident from the first hours of it, as the patients got to know each other, which led to a feeling of unity, solidarity, security, and enthusiasm. They learned more about this rare disease and our global organization. They learned that they are not alone in struggling with this disease, that treatment exists, and that it is not impossible to acquire it. They felt like a family, and they believed they could achieve their goal by joining hands and working together.

A group of patients has started on WhatsApp, and the actual work has begun in writing requests to obtain the medicine, with the support of the medical team in Tunisia, headed by Dr Mustafa Belkahia, who is making a great effort with us.

In the end, this meeting brought smiles to patients’ faces and hope back into their hearts. We are grateful for what you do for us and for all patients around the world.