From HAE UK

HAE UK CEO at EAACI
Our CEO, Angela, joined a distinguished panel at the EAACI conference in Glasgow, speaking on bi-directional decision-making alongside Dr. Sorena Kiani, Dr. Danny Cohn, and Dr. Marie Campbell.

hae day :-) Success
hae day :-) was a hit! Our social media campaign on Shared Decision Making reached wide audiences, with strong engagement and shares from members and beyond – helping to raise awareness of HAE.

New Treatments on the Horizon
We’re working hard to gain approval for two new HAE treatments, which we hope will be available to UK patients soon.

New Patient Journey Videos
Our website now features powerful new videos showcasing real HAE patient stories of two of our members, and how Shared Decision Making has transformed their care.

Looking Ahead
Next, we’re focusing on improving mental health support and starting preparations for a major Rare Disease Day event in 2026.