News from South America and Mexico

From Regional Patient Advocate Fernanda De Oliveira Martins

The major news in my region over the past few months was the Member Organization Growth and Impact Summit (MOGIS): South America and Mexico, held in São Paulo at the end of May. It was a significant opportunity for us to connect and share experiences, and support the MOs in my region with training to continue the vital work they do in their countries.

After the event, more MOs are now using and showing interest in HAEi tools such as HAEi Connect, HAEi Advocacy Academy, and the HAEi Emergency Room poster. Tools like HAEi Connect and the courses on HAEi Advocacy Academy are designed to help MOs build capacity, raise awareness about the disease, and manage their data securely and effectively.

In recent months, I was able to support physicians treating people with HAE by providing them with more information about the condition and vital connections to other experts. For example, following a message from a doctor in Uruguay who wanted to learn more about HAE and discuss details of a patient, I could connect them with a physician in Argentina who kindly offered to discuss the case with the doctor from Uruguay. This demonstrates the importance of our network and the benefit of having dedicated RPAs in regions!

Alongside the President of HAE Argentina, Alejandra Menendez, HAEi contributed to a discussion on the assessment of a modern treatment. We provided information about the disease and the importance of having access to modern medicines to prevent and treat HAE attacks. HAEi’s goal is to ensure that all people with HAE have access to medications that improve their quality of life.

We also welcome Antonio López Huesca to the leadership of HAE Mexico.