From Bettina Carty, HAE Ireland

Now that we are halfway through 2025, it has been great so far for HAE Ireland.

In March, we had our first patient meet-up, which was a great success, with patients coming from all over Ireland for the afternoon in Dublin.

In May, we had hae day :-) – this started on the 16th with Swords Castle being lit up in purple to celebrate, then on the 17th, we had a walk in Phoenix Park in Dublin City. It has been wonderful to meet so many new patients and carers in the last months.

We are looking forward to the next 6 months and the 2025 HAEi Regional Conference EMEA in October, where a number of new patients from Ireland will be in attendance.