News from Parichehr Bahraini, HAE Iran

Hereditary Angioedema (HAE) International Day at the Immunology, Asthma, and Allergy Research Institute (IAARI), Tehran University of Medical Sciences, Iran
In honor of hae day :-), the Immunology, Asthma, and Allergy Research Institute (IAARI), in collaboration with the Immunodeficiency Patients Advocacy Association (IDPA), hosted a gathering for HAE patients and their families. The event took place on Wednesday, May 14th, 2025, from 10:00 AM to 12:00 PM at the Farhoodi Conference Hall in the Children’s Medical Center in Tehran. The meeting was accessible both in person and virtually.

The meeting focused on the latest developments in the diagnosis, prevention, and management of HAE, aiming to raise awareness among patients and their families across the country.

Initially, Ms. Marzieh Salk, CEO of IDPA, mentioned that May 16th is recognized globally as hae day :-). She highlighted various awareness programs held worldwide to educate people and attract attention from society and authorities to this disease. In Iran, similar initiatives have been ongoing for five years – initially exclusive to healthcare professionals, and more recently, from 3 years ago, including programs directly for patients and their families.

She also shared updates on the institute’s activities, such as disseminating educational content via social media and supporting patient participation in international conferences, and announced details of the upcoming conferences.

Following her, Dr Mohammad Reza Fazlollahi, an allergist and clinical immunologist at IAARI, gave a lecture on the diagnosis and treatment of HAE. He emphasized the importance of awareness for managing the disease effectively and living actively with HAE. Dr Zahra Alizadeh, PhD in biomedicine, discussed the genetic factors involved in HAE. Dr Parichehr Bahraini, a pharmacist, talked about medications used in HAE and the importance of proper medication use.

At the conclusion, a patient shared his personal experience of adapting to this chronic condition and leading a vibrant, successful life while managing the illness. The speakers then responded to questions from the attendees.

For more information, you can visit the news article in Farsi on the IAARI website.