From Maria Hartofilli, HAE Greece

The HAE Patients’ Association continues its efforts to raise awareness, support patients, and advocate for early diagnosis and access to treatment across Greece.

On the occasion of hae day :-) (May 16), we successfully organized a public awareness event in collaboration with the basketball club Ethnikos Ellinoroson. The event was a great success and received a warm response from the local community.

More than 110 children from the basketball academy participated, along with a large number of people from the local community, creating a vibrant and engaging environment of awareness and support.

A special contribution was made by Dr Fotis Psarros, who provided detailed information to the public about HAE, including symptoms, treatment options, and the importance of early diagnosis. Additionally, representatives from pharmaceutical companies that offer therapies for HAE were present, providing important insights and information on available treatment options.

Thanks to this initiative, six new patients were informed about our Association and have since joined as members, expanding our growing network of support for people living with HAE.

On the institutional front, the Association continues to collaborate with governmental authorities, particularly the Ministry of Health, achieving key milestones:

Distribution of an informative poster to all Emergency Departments (EDs) across the country, helping healthcare professionals recognize and properly respond to HAE attacks.

Free genetic testing is now offered to HAE patients and their families, supporting early diagnosis, prevention, and appropriate medical care.

A 24-hour open telephone support line for patients with hereditary angioedema has been established for all of Greece by the scientific team.

And recently, a major step forward was taken: the establishment of a dedicated HAE clinic at the children’s hospital in the capital. This specialized unit will provide expert care, follow-up, and guidance for young patients and their families. It represents real progress — and real hope.

Our mission is simple but urgent: to ensure timely diagnosis, access to treatment, and a better quality of life for every person living with HAE in Greece.

We sincerely thank our members, volunteers, healthcare professionals, organizations, and all partners who contribute to our ongoing efforts.

For more information or to become a member, please visit our website kaoelladas.gr, or follow us on Instagram @haegreece or contact the Association directly.