From Camelia C. Isaic, Czech HAE Junior z.s.

HAE Junior presented a scientific poster and a new art exhibition in Budapest
HAE Junior from the Czech Republic participated as a partner organization at the prestigious scientific 14th C1-inhibitor Deficiency & Angioedema Workshop in Budapest, Hungary (29 May – 1 June 2025). This year, our patient organization presented artworks by HAE juniors & friends as well as a poster in the scientific section of the program.

The poster titled ‘Unmet Needs and Systemic Challenges of HAE Pediatric Patient Families in Europe’ shared the findings of a large-scale AI analysis of data reflecting the experience of patients from 11 European countries. This research project was made possible with the support of AMGEN #RAREis Global Advocacy Grant Program.

Read more about the study, its methods, and key findings on our website.

In addition, the new exhibition ‘My Inspiration’ prepared by HAE Junior patient organization, showcased drawings and paintings by children and adolescents with HAE, their siblings & friends. Symbolically, on International Children’s Day, their artworks displayed the everyday challenges, dreams, and sources of inspiration that help them overcome obstacles in life. The scientific conference participants hence had the opportunity to look into the world of HAE juniors through their creativity.

Learn more about the exhibition and view selected artworks on the HAE Junior website.

Many tHAEnks to all contributing talented young artists from the HAE patient community!