Country updates shared by Javier Sanatana, HAEi’s Regional Patient Advocate, Central America and Caribbean

Dominican Republic: The group is working to ensure that medications are included in the health system and continues their efforts and meetings with medical professionals to promote HAE. New HAE patients and doctors have been identified.

Puerto Rico: There have been public discussions about the recently passed Law 9 of 2025, which establishes a new support office for people with rare diseases. Encouraged by follow-up from RPA Javier Santana, the Puerto Rico Department of Health actively participated in the hae day :-)awareness campaign. The group held informational events, continued dialogue with pharmaceutical companies, and participated in local events to further educate about new HAE treatments. The local group also represented Puerto Rico at the 2025 US HAEA National Summit in Baltimore in July.

Guatemala: More allergist physicians have expressed interest in receiving training on HAE. Dr Emilia Morales, a HAE patient and healthcare professional, has actively collaborated with health centers to raise awareness about Hereditary Angioedema.

Cuba: Unfortunately, a shortage of specific medications for HAE has emerged again. New physicians have been identified who are providing the necessary care to HAE patients in this country.