From Zoe Steiner, Operations Coordinator, HAE Australasia

Over the past few months, the HAE Australasia team has been focused on strengthening connection, education, and support for the HAE community across Australia and New Zealand. A recent highlight was our Patient & Carer Meeting in Auckland, which brought together individuals from across New Zealand. We were pleased to welcome HAE specialists from both Australia and New Zealand, who shared valuable insights on current treatments, clinical trials, and assistive technologies—including apps designed to help manage life with HAE more easily. The event also created a meaningful space for local patients and carers to connect, share their experiences, and build ongoing support networks.

We’re also pleased to have recently welcomed more than 10 new members to our growing community. We’re proud of the work we’re doing to ensure that people living with HAE are seen, heard, and supported.

As we continue to support members across a wide geographical region—including time zones spanning up to five hours—we’re looking at ways to stay connected more regularly. In the coming months, we plan to hold a series of casual online catch-ups to provide a relaxed space for community connection, updates, and peer support. These informal sessions will help us stay in touch between larger events and ensure everyone has an opportunity to participate, no matter where they’re located.

We’re also actively exploring funding opportunities to support more face-to-face gatherings in the future. These in-person events are incredibly valuable for strengthening our community, sharing lived experiences, and accessing expert advice—and we’re committed to making them as accessible as possible.

Thank you to everyone who has joined us so far. We look forward to staying connected and continuing to grow our HAE Australasia community.