HAEi’s CEO and Chairman of the Board, Anthony J. Castaldo, and HAEi’s President, Henrik Balle Boysen
Dear HAEi Friends,
Welcome to the first 2026 edition of Global Perspectives – HAEi’s flagship magazine that brings together the latest news, insights, and headlines from across our global network. As we start 2026 and evaluate the progress made by so many of our Member Organizations (MOs) over the years, we are reminded that success results from consistent, fierce advocacy and patient leadership.
In this issue, our Regional Patient Advocates reflect on 2025 and share priorities for the year ahead, highlighting the steady work that expands our reach, strengthens local partnerships, and improves diagnosis and access to care.
We also explore the evolving treatment landscape, including the regulatory approval of three new HAE medicines, and consider what expanded treatment choices can mean for advances in quality of life. This edition offers updates on HAEi’s global advocacy work, including efforts to equip MOs with tools, training, and evidence that support engagement with decision makers who shape care and access.
You’ll also find news and updates from our MOs along with the latest information regarding clinical trials, scientific publications, and our continued collaboration with clinicians and researchers across our Angioedema Centers of Reference and Excellence (ACARE) network.
This edition features HAE Companion v2.0, with enhanced tools to support travel and emergency preparedness, and reflections from HAEi LEAP (Learn, Experience, Advocate, Pave the way) – our program that helps young people build advocacy skills and partner with their MOs on real-world projects.
Looking ahead, we are pleased to spotlight the 2026 Global Angioedema Leadership Conference in Madrid (26–29 March 2026). This joint event with ACARE will bring key patient opinion leaders, clinicians, researchers, and industry together to share knowledge, align strategy, and accelerate awareness and worldwide access to modern HAE therapies.
Overall, this edition highlights what MOs are fighting for and accomplishing across our global network. We celebrate the proactive, organized, and disciplined work of HAEi friends who are making a difference by providing actionable, evidence-based information to health care decision makers.
Warmest regards,
Anthony J. Castaldo
Chief Executive Officer and Chairman of the Board, HAE International (HAEi)
Henrik Balle Boysen
President, HAE International (HAEi)