Whether it’s new information, the skills, the networking, or the resolve to keep advocating for people with HAE, there is something for every patient leader and scientific professional at the 2026 Global Angioedema Leadership Conference.
‘I want to thank you for the opportunity that you provide. This type of workshop provides me the courage to continue fighting to improve the HAE situation in my country.’
– Patient Lead Participant 2024 HAEi Global Leadership Workshop
Over two days in Madrid (26-29 March 2026), the 2026 Global Angioedema Leadership Conference builds on the success of the combined HAEi Global Leadership Workshop and ACARE Global Angioedema Forum in 2024. The 2026 Global Angioedema Leadership Conference extends this unique platform for meaningful engagement to key patient opinion leaders from all 105 HAEi member countries, as well as key physicians, scientific researchers, and industry representatives.
The 2026 conference features two dynamic programs:
For patient leaders:
Sessions will focus on: Patient identification and diagnosis, advocacy training to optimize impact, strengthening access to treatments, medicine updates – both now and in the future, and strategies for engaging with governments and health ministries.
As well as expert tutorials from HAEi, delegates will also hear from their peers, with over 30 Member Organizations invited to share their experiences. Leaders from organizations across the globe will discuss practical solutions to everyday challenges, including registering and managing an organization, working with external partners, accessing medications, and increasing patient engagement. As with previous conferences, the aim is to ensure the program is relevant, interactive, and directly applicable to the work of Member Organizations, supporting leaders to strengthen advocacy, leadership, and impact within their own countries. The agenda overview is here.
98% of responding patient participants said that they would use what they learnt from the 2024 Global Leadership Workshop
For angioedema physicians, scientists, and researchers:
Expect the latest insights on angioedema, differential diagnosis, and management strategies. The latest science will be discussed through oral presentations, overview lectures, panel discussions, and poster sessions. The program will have a special focus on HAE.
The scientific program is now available, here. Over seven sessions and two keynotes, attendees will hear from experts on science and opinion across a lively mix of topics, including differential diagnosis, genetic testing, family screening, and angioedema management in special populations. By popular demand, the Scientific Program also sees the return of Angioedema Jeopardy, and with it the chance to test your angioedema knowledge.
100% of responding scientific professionals rated the ACARE Global Angioedema Forum 2024 as useful or extremely useful for their practice
The 2026 Global Angioedema Leadership Conference is an exceptional opportunity for the scientific, patient, and industry communities to come together, inspire each other, and strengthen collaborative partnerships. Although a global meeting, the program has been developed to offer something for every participant.
If you want to be one of the approximately 800-900 people at this ground-breaking event, one of the largest gatherings of the HAE global community, then don’t wait. Registration is on a first-come, first-served basis. HAEi offers extremely attractive registration rates and conditions, so apply now.