From Ernst Greber, HAE Switzerland:
24th Annual General Meeting and Program of the Swiss HAE Association
On November 7, 2025, the Swiss HAE Association held its 24th Annual General Meeting. The meeting was efficient and constructive; all agenda items were unanimously approved.
During the meeting, Jennifer Hess was thanked for her service and presented with a gift. At the same time, Ania Müller was welcomed as a new member of the board.
Annual Program 2026
- February 28, 2026: Rare Disease Day – Awareness & Public Relations
- March 26-29, 2026: HAEi Global Angioedema Leadership Conference in Madrid for Board Members only
- May 16, 2026: HAE Day – Raising Awareness
- June 13, 2026, 25th Anniversary of the Swiss HAE Association: Anniversary HAE Patient Meeting with a Day Trip: “Golden Tour – Around Mount Pilatus.”
- End of August 2026: Lama Trekking with Paula Hunkeler in Matzendorf
- End of October 2026: 9th Newsletter: “News from the Swiss HAE Association”
- November 7, 2026: HAE Patient Meeting with the 25th HAE General Assembly
SHAECS Investigator Meeting & HAE Board – December 2025
On December 3, 2025, the SHAECS Investigator Meeting took place in Bern. Around 25 participants from Switzerland attended, including representatives of HAE experts from the 10 Swiss HAE hospitals/centers, 3 board members of the Swiss HAE Association, and representatives from several pharmaceutical companies. The event was moderated by Prof. Walter Wuillemin.
A key focus of the meeting was the Swiss HAE Cohort Study (SHAECS). PD Dr. med. Urs Steiner (University Hospital Bern) presented the current status of the nationwide cohort study, which aims to register all individuals with hereditary angioedema in Switzerland in a national registry. Currently, 119 individuals are enrolled.
Further presentations addressed the HAE care landscape in Switzerland, currently available HAE therapies, and medications in development.
The Swiss HAE Association, represented by its president Helene Saam, presented the work of the patient organization and addressed the concerns and challenges faced by people with HAE in Switzerland.
The meeting fostered national exchange between medical professionals, researchers, industry, and patient representatives, and contributed to further strengthening HAE care and research in Switzerland.