From HAE Portugal

On December 13th, ADAH held its annual meeting. With the main objective of decentralizing the Association’s activities, the meeting was held for the first time in the north of Portugal and had as its theme “Hereditary Angioedema in the Northern Region”.

This meeting provided members and other participants with a unique opportunity for reflection and debate on the current panorama of the pathology in the Northern Region, in terms of diagnosis and available treatments, and the consolidation of personal ties between all those involved.

One of the scientific topics addressed was HAE with normal C1, the one with the greatest difficulty in diagnosis, as well as the most difficulty in responding to available therapies.

In addition to the scientific panel, which included 4 doctors, we had the association panel with ADAH, the participation of Maria Ferron, our RPA from HAEi, and the testimony of two patients who shared their stories with those present.

Participation in this meeting was very high, and with extremely positive feedback, which is very gratifying for us and encourages us to maintain these meetings.