From HAE Panama

2025 has been a year of very positive results for patients in Panama. After several years of meetings with the Panamanian Ministry of Health and the Office of Rare Diseases, the official treatment guidelines for patients with HAE were finally approved and distributed to all hospitals and health centers in the country. This has opened new doors, and we hope to continue making progress in the treatment of HAE in Panama.

As patients and members of the Association, we have always worked together toward the same goals. The most important has always been access to the appropriate medication for HAE. We have already obtained approval for some medications and continue working to secure approval for others that are more advanced. In addition, more patients have been diagnosed.

As a group, we will continue working to ensure that patients learn to manage the disease and that more is known about HAE.