From HAE Lebanon

On December 5, 2025, Nour El Chami, HAE Lebanon Patient Lead, attended and presented at the 16^th Annual Meeting of the Lebanese Society of Allergy and Immunology. In her heartfelt presentation, Nour shared her family’s journey with Hereditary Angioedema, beginning with the challenges that surrounded her niece Joud’s early symptoms and the long path to finally securing a clear and accurate diagnosis. She highlighted the serious consequences of HAE misdiagnosis, emphasizing how delays and misunderstandings can endanger patients and deeply affect their quality of life.

Nour also shed light on the critical lack of HAE treatments currently available in Lebanon, calling attention to the urgent need for improved medical resources and patient support. Inspired by her family’s experience, Nour announced her ongoing efforts to formally register Lebanon’s HAE patient association, which will support the existing patient group in increasing awareness, improving diagnosis, and continuing to advocate for better access to lifesaving therapies.