From Ms Sandy Chan, HAE Hong Kong
Over the past two years, we’ve achieved remarkable milestones together, and we’re excited to share some of these highlights.
Key Milestones
On 8 June 2024, we gathered at the HAE Patient and Family Day Celebration and Workshop held at the Sheraton Hong Kong Hotel.
Guest speakers Dr. Philip Li (HKU) and Dr. Jane Wong (QMH) shared groundbreaking news: Hong Kong began offering full reimbursement for all on-demand HAE medications, including C1-inhibitor replacement and icatibant. This change meant patients could access these life-saving treatments immediately, without financial burden. Attendees also had the opportunity to try the dry blood test, a new diagnostic method that makes HAE diagnosis more convenient and accessible—a true game-changer for early detection.
In April 2025, we began an exciting project: creating a HAE Picture Book that tells the story of a child and her mother navigating an HAE diagnosis.
The book will be launched in January 2026 at a special event at Sheraton Hong Kong. Available in Chinese and English, both in print and online, this resource aims to help young people recognize HAE symptoms and educate those unfamiliar with the condition.
On 28 August 2025, our chairperson, Mr. Davy Wong, attended as a guest speaker at the “Moving Towards Zero HAE Attacks” lunch conference at Le Méridien.
This meaningful gathering brought together healthcare professionals and patient advocates, all working toward a shared goal: improving the lives of those living with HAE. Davy shared his personal patient journey, inspiring others and reinforcing the importance of collaboration in achieving better outcomes.
Looking Ahead: Our 2026 Goals
As we move into 2026, our focus is clear:
- Expand awareness to neighboring regions and share our learnings.
- Improve access to modern treatments for all HAE patients. >Line break here Build a stronger sense of community by bringing patients together more regularly for support and connection.