Fiona Wardman, Executive Vice President and Chief Advocacy Officer
Looking back on a year of progress and impact
In 2025, HAEi continued to strengthen Member Organizations (MOs) as a core part of improving outcomes for people living with HAE. I want to take this opportunity to showcase just a few of the projects and programs we started in 2025. As ever, if you’re interested in HAEi’s support to take your MO to the next level, your HAEi Regional Patient Advocate (RPA) will be only too happy to help. Contact them today to create a better tomorrow for people with HAE in your country.
Progress plotted in Brazil
A key milestone was the Member Organization Growth and Impact Summit (MOGIS), a pilot project held in São Paulo, Brazil, that brought together MOs from South America and Mexico. The Summit focused on practical topics, including HAEi tools and resources, leadership development, governance, advocacy planning, and peer learning. It also provided valuable space for open discussion around shared challenges and regional realities, with strong feedback highlighting the value of collaboration and experience-sharing. You can learn more about the MOGIS in an article in the 2025 July issue of Global Perspectives. We believe this type of project can support MOs around the world, so look out for more information on this in a future Global Perspectives.
An innovative education project in Africa
The Brazzaville Project is a partnership between HAEi and Dr Coretta’s organization, English for All Community Service, aimed at improving awareness and education about angioedema, and specifically HAE, in Brazzaville, Republic of the Congo.
As part of the project, HAEi is producing an educational video that will be hand-delivered to hospitals and clinics across the city. To support learning and assess impact, doctors will complete a short survey on knowledge and clinical experience following the video.
This project reflects HAEi’s commitment to targeted, locally relevant education in underserved settings. You can learn more about this project in this edition of Global Perspectives.
2025 Conferences score highly for impact
Evaluation from HAEi’s 2025 Regional Conferences in APAC and EMEA showed strong outcomes across leadership, advocacy, and regional meetings. Participants reported increased confidence, improved understanding of advocacy and organizational development, and high value in networking and peer exchange.
Feedback continues to inform how future conferences are designed, ensuring they remain practical, relevant, and responsive to the needs of the global HAE community.
Continuing our growth
Building on 2025 momentum, all HAEi Regional Patient Advocates and Advocacy Leads are continuing to expand the countries and regions we serve, with a focus on areas where awareness of HAE and patient advocacy structures remains limited. One of the key regions of focus is Central Asia.
As of the end of November, HAEi RPA Fanny Schappler has added Central Asia to her current responsibilities. Fanny already serves as RPA for Afghanistan and has more recently been supporting patients, caregivers, and healthcare professionals in Kyrgyzstan, Tajikistan, Turkmenistan, and Uzbekistan.
Early work in the region is focused on understanding local needs, connecting with clinicians and patient communities, and identifying individuals interested in developing future advocacy efforts. Across all activities, HAEi remains focused on practical impact, inclusive engagement, and supporting patient communities at every stage of development.
It’s always challenging to select a few 2025 initiatives to highlight. HAEi develops tools and resources to support the HAE community, as well as to give our MOs every advantage in the fight for access to medication. As ever, we are always keen to hear from you. You can contact any of the HAEi Regional Advocacy team at any time, or catch us at a local, regional, or global event in 2026!