Michal Rutkowski, Director, Regional Patient Advocate Program
HAEi Regional Advocacy – Strengthening HAE Advocacy!
It is hard to believe another 12 months have passed. Time is flying in pursuit of HAEi’s Mission, Vision, and Values, and the start of 2026 provides the perfect opportunity to reflect on some highlights from our Regional Advocacy Team and their positive impact on HAEi Member Organizations, patients, and their families.
In the following News from RPAs, they share select highlights from 2025 and their goals for 2026.
And, what a year 2025 was! As Director of the RPA Program, I can add a few more highlights to an already impressive list, many of which have been shared through our social media platforms, website, and this magazine:
- We now have a total of 105 HAEi Member Countries, with the addition of HAE Vietnam, HAE Trinidad & Tobago, HAE Niger, and HAE Namibia.
- The HAEi RPAs now support more regions than before, with the addition of Central Asia. You can read more about this here.
- HAEi tools and resources continue to be translated into even more languages. To share one example, the HAEi Emergency Card is now available in 47 languages.
We are proud of our achievements to date. But we know our work is not done. The HAEi Regional Advocacy Team continues to work to improve the situation for HAE friends worldwide, with the vision of achieving a world free of barriers where effective treatments are accessible everywhere.
Stay tuned!
Michal Rutkowski
Director, Regional Patient Advocate Program