From Rosa María Pérez González, HAE Cuba

We, the Cuban patients with Hereditary Angioedema, send you our warmest greetings and express our respect and gratitude for the work carried out by the International Society (HAEi) on behalf of those of us living with this disease worldwide. For our community, your work represents a source of hope, support, and constant companionship.

In the current context of Cuba, marked by a sustained economic, social, and health crisis, it is necessary to share with you that access to specialized diagnostic tools and modern medications indicated for the treatment of Hereditary Angioedema remains impossible. Currently, specific therapies are unavailable in the country, and in the face of acute, life-threatening crises, the only available treatment option is fresh frozen plasma.

Nevertheless, the Cuban medical community continues its efforts to conduct clinical studies on individuals with compatible symptoms or a family history of the condition, with the aim of identifying them and providing them with medical follow-up, with a view to future opportunities for diagnosis and treatment. Both patients and healthcare professionals remain open and receptive to any possibility of international aid and cooperation that will allow us to advance the study and treatment of Hereditary Angioedema in Cuba.