From Ahtashamul Habib Ovi, HAE Bangladesh

HAE Bangladesh has taken a significant step forward in advancing awareness and understanding of Hereditary Angioedema (HAE) by completing the translation of essential patient education materials into Bengali. These materials, including the HAE emergency card, are now available on haei.org and are accessible to all patients seeking information on HAE, including its diagnosis, management, and treatment.

Through our newly launched website hosted by HAEi, we are successfully connecting an increasing number of patients across the country, and the national HAE patient community continues to grow. To further support patient access to care, the website now includes a curated list of hospitals and specialist physicians, enabling patients to connect with appropriate healthcare providers more easily.

In preparation for hae day :-) 2026, HAE Bangladesh is planning a full-day awareness event to be held at a renowned hospital in Bangladesh. This initiative aims to strengthen national awareness of HAE and formally raise the HAE flag as a symbol of advocacy and solidarity.

Currently, C1 esterase inhibitor injections are not commercially available in Bangladesh. To address this critical gap, we have established a pharmaceutical channel with neighboring India, enabling patients to order the medication and receive delivery in Bangladesh. At the same time, we are actively working toward making this treatment directly available within Bangladesh in the near future.