From Rachel Annals
Coordinator, Global Advocacy and ACARE

HAEi’s partnership with ACARE continued to grow in 2025, enabling us to support more healthcare professionals and increase awareness of HAE worldwide. It’s been a busy and rewarding year, and it has been great to see how much HAEi and ACARE have supported each other.

Strengthening communication and connections

One of the new initiatives for 2025 was a monthly HAEi e-newsletter for the ACARE network. Each edition focuses on a different topic, highlighting HAEi’s tools, services, current projects, and upcoming events that may be useful to ACARE centers. It has been a great way to keep in touch with the network and share practical resources.

Additionally, part of my role is to speak directly to ACARE center leads to encourage closer collaboration with HAEi. This has included offering to connect physicians with their local HAE patient organizations, thereby helping build stronger links between medical professionals and the communities they support. This is an important step in making sure people living with HAE receive not only good medical care, but also community support.

Growth of the ACARE network

It has been exciting to see the ACARE network continue to grow in 2025, with many new centers gaining accreditation. By the end of the year, the total number of ACARE centers reached 113. The network also expanded into new countries – Egypt, Kenya, Latvia, and New Zealand, meaning that expertise in HAE care is now available in even more parts of the world.

Supporting education and sharing the patient perspective

Throughout the year, HAEi was included in ACARE’s Level Up and Make a Difference webinars. The involvement of HAEi means that the patient’s perspective was always available. As someone who lives with HAE, I feel strongly about this. It is heartening to see it valued by ACARE too.

ACARE held two preceptorships in 2025, in Berlin and Cairo, and HAEi participated in both. We took the opportunity to speak about HAE and share more about the tools, services, and support HAEi offers. These events were a valuable chance to connect directly with healthcare professionals and strengthen our collaboration in these regions.

HAEi Advocacy Academy, our education and learning platform, helped inspire the development of ACARE’s own Excellence On Demand learning platform. The wider HAEi team worked closely with the ACARE team to help create this new, tailored learning hub for healthcare professionals, which offers CME-accredited content, focused educational topics, and evidence-based updates from leading clinicians and researchers. This collaboration reflects our shared commitment to high-quality, accessible education.

Raising awareness together

Another important area of collaboration has been social media. We shared ACARE posts on HAEi’s channels throughout the year, helping raise ACARE’s profile, reach new audiences, and build connections within the global HAE community.

Looking ahead to 2026

I’m really looking forward to continuing to work with ACARE in 2026. A key highlight will be the 2026 Global Angioedema Leadership Conference, where we are working closely with the ACARE team to plan an engaging and educational program for physicians and other healthcare professionals. You can read more about the conference here.

Beyond the conference, there is a busy program of ACARE projects and preceptorships, and HAEi will continue to connect and support ACARE and center leads. Together, we are building a stronger global community of physicians, Member Organizations, and people living with HAE. 2025 has shown how much we can achieve when we work together, and we are all looking forward to working even more closely in the year ahead.