HAEi’s CEO and Chairman of the Board, Anthony J. Castaldo, and HAEi’s President, Henrik Balle Boysen

Dear HAEi Friends,

We are delighted to welcome you to the first 2025 edition of Global Perspectives – HAEi’s flagship magazine that provides a comprehensive overview of what is happening in the global hereditary angioedema (HAE) community.

Embracing Opportunities across APAC
This edition shines a spotlight on the 2025 HAEi Regional Conference APAC, which brought together about 300 people with HAE, caregivers, and HAE expert physicians from 15 countries across the Asia-Pacific region. Under the theme ‘Embracing Opportunities’, the conference highlights our community’s shared commitment to overcoming barriers and forging stronger bonds within and across borders. With insightful conference sessions and collaboration among people with HAE, caregivers, healthcare professionals, and the pharmaceutical industry, this milestone event has sparked regional inspiration that will resonate globally.

We encourage you to explore the full conference coverage in this edition and discover how the collective efforts of our community can transform challenges into real progress by sharpening advocacy efforts, raising awareness, and expanding access to medicines across the APAC region and beyond.

Regional Patient Advocates: Expanding the impact
This year, our Regional Patient Advocates and Advocacy Leads are more active than ever, with bold plans for 2025. With “boots on the ground” in all corners of the globe, Regional Patient Advocates and Advocacy Leads are guiding strategic initiatives to drive awareness, education, community engagement, and access to care. Their efforts include promoting the use of powerful tools like HAEi Advocacy Academy and HAEi Connect, translating key resources such as ‘Understanding HAE’ and ‘Women with HAE’, and empowering local leaders through targeted workshops and policy-focused projects.

Importantly, Regional Patient Advocates and Advocacy Leads are inspiring Member Organizations to build bridges between patient groups and decision-makers ensuring HAE remains a priority for governments and healthcare systems. Key events, such as the 2025 HAEi Regional Conference APAC, the upcoming 2025 HAEi Regional Conference EMEA, and the Member Organization Growth & Impact Summit pilot project in South America and Mexico, underscore HAEi’s critical role in uniting our community and fiercely advocating for improving the lives of people with HAE.

Introducing the LEAP Class of 2025
Looking ahead, we’re excited to welcome the LEAP Class of 2025, a dynamic group of 18 young patient leaders who will begin their LEAP journey with a kickoff meeting in April. With guidance from skilled mentors, the LEAP students will participate in a rich curriculum that features training in leadership, communication, community building, along with practical, action-oriented advocacy skills.

Together, toward a stronger future
Whether it’s a first-time diagnosis or a life-changing connection made at a conference, every step forward is made possible through the dedication of our community. The stories in this edition of Global Perspectives reflect not just what’s happening today – but what’s possible when we come together, support one another, and embrace opportunity.

We are very happy that you are such an important part of the global HAE movement, and wish you happy reading.

Warmest regards,