From HAE Ukraine

This year, we continue the active work of the association, aimed at raising awareness of HAE in Ukraine. We are developing useful adapted materials for young patients and their parents, we involve families in participating in events, and we are preparing for a large-scale All-Ukrainian conference for the HAE day in May.

On February 28, on the day of the World Day of Rare Diseases, the “Ukrainian Patients Association for HAE” together with the public organization “Rare Immune Diseases” held the forum “Side by Side. Together we are strong!” dedicated to the support of patients with primary immunodeficiencies (PID) and hereditary angioedema (HAE).

Immunologists, allergists, nurses, patients, and their families gathered under the auspices of “Kyiv Nephrology Center” and “Children’s Hospital No.1” to discuss the most pressing issues of diagnosis, treatment, and support of patients by the medical community and state programs.

The forum program included speeches by leading specialists and managers of specialized hospitals, stories of projects and initiatives, master classes by nurses, and an “Ask the Doctor” session, where participants could get answers to their questions. Competitions with prizes were organized by animators for children.

Many thanks to our sponsors LLC “Takeda”, “Biopharma”, “Octapharma”, and the technical organizer “Open Likar”.

The event was an excellent platform for sharing experiences and creating new initiatives to support patients. Together, we are a force!