News from South Asia, Germany, Austria, Switzerland, and Israel

From Regional Patient Advocate Fanny Schappler

Outside of the wonderful 2025 HAEi Regional Conference APAC, it’s been an active start to the year in countries I support. I’m coordinating many translations of HAEi resources for South Asian countries, and we’re planning in-person patient meetings.

I’m excited to share that as a result of collaboration with the HAEi Team, Afghanistan launched their HAEi Hosted Website, and I supported HAE India with their governance model, which they are now using and recruiting new volunteers.

Following the 2025 HAEi Regional Conference APAC, the MO leaders of the countries I support and I will hold quarterly “South Asian” meetings to continue exchanging best practices and ideas amongst neighboring countries.

I’m also excited to be on the ground, connecting with patients, caregivers, and local doctors when MOs organize face-to-face meetings. Such meetings are instrumental to understanding the reality of the communities we serve and ensuring local MO activities and resources meet the local needs. I’m currently in the planning stages of meetings and visits for Switzerland, India, Austria, and Germany, and I will share more about the meetings in future updates.